Summer Reception with Bowel Cancer UK

Cancer & Me, Uncategorized

Fun, emotional, heartbreaking and inspiring – just your standard Thursday night!

I was so excited a few weeks ago to receive an invitation to Bowel Cancer UK’s Summer Reception and the event was finally held on Thursday evening. Held at the Royal College of General Practitioners on an amazing roof-terrace in London there was a mixture of researchers, medical practitioners, supporters, writers, survivors, I’m sure many more interesting people and my husband and I.

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I must admit to not knowing what to expect but it was wonderful, interesting but also emotional. Speaking with other people who have, like me, been directly effected by Bowel Cancer and people who work tirelessly improving everything from patients survival rates and quality of life to government policy and social awareness – and basically STOP Bowel Cancer, it brought a number of experiences back to life.

My highlight was listening to speeches from both a research scientist and Deborah Alsina who gave us a flavour of what is going on behind the scene at Bowel Cancer UK…

Bowel Cancer UK export the need for research with their Gaps Analysis Project. It is not just one disease but could be as many as 7 or 8.

Money from Bowel Cancer UK bring the best in the UK to fight this particular cancer and designing new approaches such as personalised medicine.

Exciting science that can have a real impact. Understanding the illness is key to improving the outcome for patients.

As amazing as everything they are doing is, it also reminds you just how much still needs to be done.

Bowel Cancer remains the second most common cause of cancer death in the UK. However if you are diagnosed early – within Stage 1 – your chances of survival are 90% that’s why ongoing research, developments and symptoms awareness (so you can get an early diagnosis) are so vital.

Then great news is that you can now become a Friend of Bowel Cancer UK to ensure this work continues.  Sign up here and you can give a couple of quid a month and continue the fantastic work Bowel Cancer UK do.  I’m so grateful.

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Bowel Cancer Awareness Month – Day 3

Cancer & Me

images-2The Signs and Symptoms of Bowel Cancer

There are a few symptoms that you can look out for, but my advice would be, if you are unsure about anything, see your GP and don’t leave until they have referred you!

If you want to know more about how I got diagnosed you can read all about it here.

  • Rectal bleeding – blood in your poo or in the pan.
  • A change in bowel habits that last for longer than 3 weeks.
  • Unexpected weight loss.
  • A pain or lump in your stomach area.

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Bowel Cancer Awareness Month!

Cancer & Me

HAPPY BOWEL CANCER AWARENESS MONTH EVERYONE!

BowelCancerUKYes April is Bowel Cancer Awareness month.  A chance to talk about all things Bowel Cancer related.  Yay!

To help raise awareness, everyday this month I will be posting information, articles, what to look for, facts and how tops…  So stay tuned to find out all the information you need.

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The Bourne Diagnosis – Nicola B & the Big C

Cancer & Me

I knew that I had cancer.  I had a strong inner feeling and I knew.  I was experiencing textbook symptoms and had a basic knowledge based on a strong family history – my mother, Grandmother and Great-Grandfather all died from Bowel Cancer at ‘young’ ages.  Even so, getting diagnosed was not as easy as it should have been.

I had been getting rectal bleeding on and off, probably since 2006.  Over the years I had visited various GPs but they always said the same, that I was too young to have  Bowel Cancer, it was probably a small internal cut and if the bleeding went,  there was nothing to worry about.  The bleeding would stop so as far as the GPs were concerned, that was that.  I now know that the bleeding was probably polyps in the colon, which can bleed intermittently and it is these polyps that grow into cancerous tumours.  In hindsight this was the beginning and could have probably been dealt with in the early stages if my initial concerns and symptoms had been taken seriously.

My mum and I at my birthday, nine months before she passed away from Bowel Cancer in 2008

My mum and I at my birthday, nine months before she passed away from Bowel Cancer in 2008

During my second pregnancy in 2011 the bleeding became intolerable, even so my GP still refused to send me for tests. At my post-natal 6 week check with the GP, after ridicule for suggesting something could be seriously wrong, I pushed and pushed until finally she agreed to refer me.

The level of incompetence shown to me by GPs was staggering, I was laughed at by one doctor for even suggesting I may have cancer at my age and told by another that it was a waste of NHS money to send me for tests.  These are just a couple from a long list of examples.  People often focus on the incompetence of the GPs but before hating too much, remember this;

  • Firstly; there is no point in dwelling on that now, I’m sure they were doing their best (I do still say that through slightly gritted teeth).
  • Secondly; it is due to an outdated idea held by many GPs that Colon Cancer only affects people over 65, a misperception that must change.  Partly through raising awareness, I’m hoping speaking out will help.
  • Thirdly; for every incompetent GP I have come across I have met 100 NHS staff who are incredible and worthy of more praise than I could ever give them.
  • Lastly; I love the NHS.  When I was ill and reading blogs of the financial stress Cancer patients in the USA have, I would feel an overwhelming sense of gratitude that I live in the UK and had none of those worries thanks to the NHS.  I was going to be treated and did not need to worry about paying for it.  Amazing!

I was finally referred for a Flexible Sigmoidoscopy which is a camera in the rectum and as pleasant as it sounds!  Having said that, I remember thinking that it would be the worse thing in the world and now I know that there are much worse things, everything in perspective people!  Going into the hospital was awful.  I had a designated nurse to look after me who said at at the end, she would give me my results.  They gave me a mask so that I could take Gas & Air as I needed it and in we went.

I don’t really remember much after that for a while.  Apparently I took in so much Gas and Air whilst having the procedure I had to be put in a recovery for a while (what can I say, that stuff’s good).  Bearing in mind that I really was expecting cancer, I felt I had my theory confirmed when I asked the nurse what the verdict was and she said that the consultant was going to speak with me himself.  When the consultant said he wanted to speak with me in a private room and thought my husband should be present, I thought, this has to be the most obvious way to let someone know they have cancer, without telling them.  So as you can imagine, I was far from a shocked when the consultant  told me he had found a tumour and was sending it for further testing.  I asked if in his expert opinion it was cancer and he said yes. The consultant kept saying, I’m sure this comes as a massive surprise to you, I was thinking, “no…. not really”.

You never know how you are going to react in these situation but for me, all I kept thinking was, ok, at least we know where we are now and can start getting it treated, although at this point I had no idea just how ill I was (we will talk about that later).

My experience trying to get diagnosed made me realise how important it is to take responsibility for your own health. You know your body, you know if something is wrong.  Trust your instincts.  I know how scary it is to say to a doctor, I think your wrong or I wont accept that – I found it crippling getting the words out but thank God I did.  My surgeon later told me my cancer was so far spread that if I had waited even 6 months, they wouldn’t have been able to do anything. That’s a pretty scary thought!

As I mentioned, my misdiagnosis came from an outdated idea that Bowel Cancer affects the over 65.

THIS IS NOT TRUE!!!

BowelCancerUKIt can happen to anyone at any age so if you have any symptoms or concerns, do not take a chance.  Go, see, speak and don’t take no for an answer.  Trust me.  The wonderful Bowel Cancer UK are running a fantastic campaign ‘Right Test Right Time’ which is all about this exact topic.  Have a look and lets all take action together!!